Initial orientation

Initial orientation

14 resources

Data for Germany, Austria, Switzerland

Demographics, gender distribution, age distribution, time of diagnosis in DACH (Germany, Austria, Switzerland).

Website DEUTSCH zenodo.org
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Data on occurrence, gender distribution and age peak

Deutsche Gesellschaft für ME/CFS

Processed data on incidence, gender distribution, age peak and research funding.

Website DEUTSCH mecfs.de
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Facts and figures on Long Covid in Germany

Long COVID Deutschland (LCD)

A fact sheet from the LCD (as of May 2022) on LC. It covers current studies, outpatient care and rehabilitation, as well as research and therapy.

PDF DEUTSCH longcoviddeutschland.org
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Long Covid - medical aspects

Long COVID Deutschland (LCD)

A medical overview of Long Covid, including diagnostic procedures, medical guidelines, continuing education opportunities, and statements from medical organizations on LC.

Website DEUTSCH longcoviddeutschland.org
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ME/CFS—an organic disease

Deutsche Gesellschaft für ME/CFS

Pathophysiology

Studies have identified numerous abnormalities that point to an organic cause of ME/CFS.

Website DEUTSCH mecfs.de
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MECFSmed.de – Directory of doctors

MECFSmed

MECFSmed demystifies ME/CFS to equip healthcare professionals and patients with the tools and knowledge they need for effective treatment strategies, and provides a directory of healthcare professionals to facilitate the search for appropriate medical care.

Website DEUTSCH mecfsmed.de
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Patient numbers and frequency in Germany

The National Association of Statutory Health Insurance Physicians (KBV) hereby issues the following statement on the motion submitted by the CDU/CSU parliamentary group in the Bundestag, printed paper 20/4886 dated 14 December 2022, "Helping ME/CFS sufferers and their families – For better healthcare and therapy provision, education and recognition".

Prevalence on a scientific basis

If the prevalence estimates from four studies based on criteria catalogues with PEM as the leading symptom are applied directly to the German population, the number of patients with ME/CFS in Germany can be estimated at between approximately 140,000 and approximately 310,000. It seems plausible to assume that the SARS-CoV-2 pandemic may lead to an increase in the prevalence of ME/CFS, as some post-COVID patients meet the diagnostic criteria for ME/CFS.

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In-depth insight into ME/CFS

In-depth insight into symptoms, comorbidities and treatment approaches in English.

Website ENGLISH me-pedia.org
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Overview and dealing with ME/CFS

Fatigatio e. V. - Bundesverband ME/CFS

Overview of symptoms, therapies, diagnosis and coping with ME/CFS.

Website DEUTSCH fatigatio.de
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Overview of ME/CFS

Deutsche Gesellschaft für ME/CFS

ME/CFS is one of the last major diseases that has hardly been researched. Here is an initial overview.

Website DEUTSCH mecfs.de
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Economic costs of long Covid

Statistical analysis by the University of Frankfurt from 2023 on the economic costs of Long Covid.

Website ENGLISH bmchealthservres.biomedcentral.com
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Economic costs of ME/CFS

Deutsche Gesellschaft für ME/CFS

The following overview of current publications on this topic for other countries shows that an economic loss in Germany of approximately €7.4 billion per year is a realistic estimate. This contrasts with official funding for ME/CFS research of €0.

What is Long Covid?

Long COVID Deutschland (LCD)

A first informative overview of what Long Covid actually is. It points out that LC can often progress to ME/CFS after a longer period.

Website DEUTSCH longcoviddeutschland.org
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