Coping with everyday life

Medications, relaxation techniques and tips on sleep hygiene are presented.

blue-ME is a relatively new app that helps those affected to manage their energy, facilitates pacing, and offers many functions for personal documentation. Available for Android and iOS.

blue‑ME is your smart companion app to support you with ME/CFS, post‑COVID, post‑vaccination, or fibromyalgia. It helps those affected and their loved ones to better understand symptoms and cope with everyday life with chronic fatigue.ue-ME ist eine relativ neue App die Betroffenen bei der Einteilung der Energie helfen, Pacing erleichtern soll und viele Funktionen zur eigenen Dokumentation bietet. Verfügbar für Android und IOS.

blue‑ME ist Ihre intelligente Begleiter‑App zur Unterstützung bei ME/CFS, Post‑COVID, Post‑Vac oder Fibromyalgie. Sie hilft Betroffenen und ihrem Umfeld dabei, Symptome besser zu verstehen und den Alltag mit chronischer Erschöpfung zu meistern.

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People with ME/CFS can apply for various forms of support in their everyday lives. These include aids, care or adjustments to their work situation. What is available depends, among other things, on the severity of the illness. In addition to appropriate medical care, support from family and friends is particularly important.

Blog post with a list of helpful apps.

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe chronic illness that often leads to a high degree of physical disability.

Post-exertional malaise is the specific and characteristic key symptom of ME/CFS. Post-exertional malaise refers to the exertion-induced worsening of symptoms typical of ME/CFS (and the ME/CFS subtype of long COVID) and is a prerequisite for a diagnosis of ME/CFS in all established clinical criteria.

Blog post with a list of aids for everyday life

Relaxation exercises: Here you will find a wide range of ways to positively influence the autonomic nervous system!

As an affected person, you will find information on topics such as returning to work after incapacity and the effects of illness on everyday working life. Employers can also find information here.

Exercise intolerance is a criterion for the diagnosis of ME/CFS, with PEM defined as a worsening of symptoms after physical, mental or emotional exertion. In addition to medical treatment by a doctor, reducing PEM (i.e. avoiding so-called "crashes", the worsening of symptoms due to exertion) can improve the basic functionality of CFS patients.

A sleep diary can be helpful for better assessment and identification of causes.

Healthcare providers and patients should establish which symptoms are most disruptive or disabling and tailor management plans accordingly. Treatment should be directed toward the most problematic symptoms as prioritized by the patient. It is also important to incorporate strategies to prevent worsening of symptoms into initial and subsequent treatment plans.

Various measures are described that can improve or enable the working life of those affected by Long Covid. It can be assumed that the same measures will also help ME/CFS patients.

Visible is an app that helps people manage their energy levels and pace themselves more effectively.

The app is available for Android and iOS. Unfortunately, it is only available in English, but it has good reviews.

“Do you live with an energy-limiting health condition? Join over 100,000 people with Long Covid, ME/CFS, POTS, Fibro, and more who are improving their pacing with Visible.”